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ONCOR: design of the Dutch cardio-oncology registry

The relative new subspecialty 'cardio-oncology' was established to meet the growing demand for an interdisciplinary approach to the management of cancer therapy-related cardiovascular adverse events. In recent years, specialised cardio-oncology services have been implemented worldwide, which all strive to improve the cardiovascular health of cancer patients. However, limited data are currently ava

https://www.lupop.lu.se/article/oncor-design-dutch-cardio-oncology-registry - 2025-09-15

High acquisition rate and internal validity in the Scandinavian Obesity Surgery Registry

The acquisition rate during 2012–2018 was compared with Swedish national databases, while registered data in 89 selected variables (67 mandatory) was compared with medical records of 1860 randomly selected patients from all bariatric centers (n = 39–43) reporting to SOReg. The evaluation was done by 1 independent observer. Completeness of data in the entire registry for the same time period was st

https://www.lupop.lu.se/article/high-acquisition-rate-and-internal-validity-scandinavian-obesity-surgery-registry - 2025-09-15

The case for open science: rare diseases

The premise of Open Science is that research and medical management will progress faster if data and knowledge are openly shared. The value of Open Science is nowhere more important and appreciated than in the rare disease (RD) community. Research into RDs has been limited by insufficient patient data and resources, a paucity of trained disease experts, and lack of therapeutics, leading to long de

https://www.lupop.lu.se/article/case-open-science-rare-diseases - 2025-09-15

Accuracy of Finnish Cancer Registry colorectal cancer data: a comparison between registry data and clinical records

FCR data are based on independent cancer report forms (CRFs) from both clinicians and pathologists. Data from patients diagnosed with CRC during a randomized, population-based CRC screening program between 2004 and 2012 were extracted from the FCR and compared to data extracted from the original clinical patient records of these individuals by two gastrointestinal surgeons. The study focused on tu

https://www.lupop.lu.se/article/accuracy-finnish-cancer-registry-colorectal-cancer-data-comparison-between-registry-data-and - 2025-09-15

Lokalt projekt blev nationellt samarbete för ökad samsyn inom forskningsdataområdet

Den 10 februari höll SND ett webbinarium om verksamhetsarkitektur och forskningsdata. Webbinariet anordnades av Monica Lassi (Lunds universitet) och Mikael Wettercrantz (Karolinska institutet). De berättade om metoder och erfarenheter av att skapa överblick inom sina respektive verksamheter, och det nationella samarbete som håller på att växa fram. Läs mer på https://snd.gu.se/sv/nyheter/lokalt-pr

https://www.lupop.lu.se/article/lokalt-projekt-blev-nationellt-samarbete-okad-samsyn-inom-forskningsdataomradet - 2025-09-15

Formas årliga öppna utlysning

I den årliga öppna utlysningen välkomnar Formas ansökningar inom rådets tre ansvarsområden – miljö, areella näringar och samhällsbyggande. Syftet med utlysningen är att möjliggöra för forskare att angripa forskningsbehov som de själva identifierat. Utlysningen öppnar för ansökningar 25 februari. Sista ansökningsdag är 8 april. Läs mer på https://formas.se/soka-finansiering/olika-typer-av-finansier

https://www.lupop.lu.se/article/formas-arliga-oppna-utlysning - 2025-09-15

Enabling research – research data for future use

Join in on a conversation with Professor Per Ambrosiani from the Department of Language Studies and Sanna Isabel Ulfsparre, librarian at the Umeå University Library. The conversation covers what counts as data, and how you make research data accessible. How does it feel to make data accessible to the world and how does it work? Read more at https://www.umu.se/en/feature/enabling-research--research

https://www.lupop.lu.se/article/enabling-research-research-data-future-use - 2025-09-15

Adaptation of the Charlson Comorbidity Index for Register-Based Research in Sweden

Comorbidities often play an important role in health outcomes and survival. They may also influence the relationship between various exposures and other health outcomes as well as quality of life for a given condition. In epidemiology, two main approaches to adjust for comorbidity can be discerned: (I) adjusting for separate disorders or (II) creating a numeric index that can be included in a stat

https://www.lupop.lu.se/article/adaptation-charlson-comorbidity-index-register-based-research-sweden - 2025-09-15

Which data are available in central registries on bladder cancer patients in the five Nordic countries

The aim of this study was to give a collective overview on all available data sources on bladder cancer patients in the Nordic countries including the amount of detail and coverage. Which data are available in central registries on bladder cancer patients in the five Nordic countries: Scandinavian Journal of Urology: Vol 0, No 0 (tandfonline.com)

https://www.lupop.lu.se/article/which-data-are-available-central-registries-bladder-cancer-patients-five-nordic-countries - 2025-09-15

Reversing Bonferroni

It is common for conclusions of empirical studies to depend on multiple significant outcomes. This practice may seem reasonable, but it has some unintended effects. In particular, the compound Type I error rate for multiple studies (the likelihood of concluding that an effect exists when it does not) can be much lower than that of the individual studies. This in itself is not a problem since a low

https://www.lupop.lu.se/article/reversing-bonferroni - 2025-09-15

Big data in vascular surgery: registries, international collaboration and future directions

Given the increasing availability of large data set, small single‐institutional series raise decreasing attention. Rapid expansion of technology from electronic medical records to easily accessible internet access, and widespread use and acceptance of registries in the medical world has allowed for research and quality improvement efforts using ‘big data’. Big data in vascular surgery: registries,

https://www.lupop.lu.se/article/big-data-vascular-surgery-registries-international-collaboration-and-future-directions-0 - 2025-09-15

Nätverksnytt från SND: Fem år är kortare än man kan tro [ledare]

I forskningspropositionen Forskning, frihet, framtid – kunskap och innovation i Sverige, som kom i slutet av 2020, gör regeringen det tydligt att de vill påskynda omställningen till ett öppet vetenskapssystem. Forskningsdata som finansieras med offentliga medel ska göras tillgängliga ”så öppet som möjligt och så begränsat som nödvändigt” senast från 2026. Det är knappt fem år kvar! Fortsätt läsa h

https://www.lupop.lu.se/article/natverksnytt-fran-snd-fem-ar-ar-kortare-man-kan-tro-ledare - 2025-09-15

Meeting on Big Data

Registration is now open for the T1 and T5 DATA meeting which will take place on Thursday 3 May in Lundmarksalen in the Astronomy Building. Please register by noon on Thursday 26 April by emailing mbd [at] astro [dot] lu [dot] se with the subject “DATA 3 May Registration”. LOCATION: Lundmarksalen in the Astronomy Building. ·         09.00 - 09.30 Coffee in the foyer·         09.30 - 10.00 Introduc

https://www.lupop.lu.se/article/meeting-big-data - 2025-09-15