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Dementia and palliative care

SveDem, the Swedish Dementia Registry - a tool for improving the quality of diagnostics, treatment and care of dementia patients in clinical practice Improved data validity in the Swedish Register of Palliative Care Validation study of an end-of-life questionnaire from the Swedish Register of Palliative Care registerforskning.se A research portal maintained by the Swedish Research Council (Vetensk

https://www.lupop.lu.se/lupop-researchers/population-data/swedish-registers/dementia-and-palliative-care - 2025-07-21

Cancer

The Swedish Cancer Register The completeness of the Swedish Cancer Register: a sample survey for year 1998 Completeness and correctness of registration of renal pelvic and ureteral cancer in the Swedish Cancer Registry The National Prostate Cancer Register Evaluation of data quality in the National Prostate Cancer Register of Sweden Capture rate and representativity of The National Prostate Cancer

https://www.lupop.lu.se/lupop-researchers/population-data/swedish-registers/cancer - 2025-07-21

The Swedish National Patient Register

The National Patient Register comprises data on health care episodes in inpatient (hospital) and outpatient specialist care. It is maintained by the Swedish National Board of Health and Welfare. The National Patient Register at the Swedish National Board of Health and Welfare (Socialstyrelsen, in Swedish) Arthritis Validity of ankylosing spondylitis and undifferentiated spondyloarthritis diagnoses

https://www.lupop.lu.se/lupop-researchers/population-data/swedish-registers/swedish-national-patient-register - 2025-07-21

Malmö OsteoArtros studie

Karaktärisering av olika kategorier av knäartros i en populationsbaserad kohort, och en jämförelse av livskvalitet och kostnader mellan de som sökt och de som inte sökt sjukvård Vid enheten för klinisk epidemiologi, Lunds universitet, forskar vi med fokus på sjukdomar och symptom/skador med fokus på artros samt ledskador. Knäartros (i dagligt tal kallat knäförslitning), är den vanligaste anledning

https://www.lupop.lu.se/malmo-osteoartros-studie - 2025-07-21

The Swedish Cause of Death Register

The Swedish Cause of Death Register comprises data on all deaths of people registered in Sweden, and from 2012 also deaths that occurred in Sweden even if the deceased was not registered. The register is maintained by the Swedish National Board of Health and Welfare. The Cause of Death Register at the Swedish National Board of Health and Welfare (Socialstyrelsen, in Swedish) Detection of Dementia

https://www.lupop.lu.se/lupop-researchers/population-data/swedish-registers/swedish-cause-death-register - 2025-07-21

The Swedish Prescribed Drug Register

The Prescribed Drug Register was established in July 2005 and is maintained by the Swedish National Board of Health and Welfare. It contains data on all prescribed drugs dispensed at pharmacies in Sweden. The Prescribed Drug Register at the Swedish National Board of Health and Welfare (Socialstyrelsen, in Swedish)   The First Decade with the Swedish Prescribed Drug Register - A Systematic Review o

https://www.lupop.lu.se/population-data/swedish-registers/swedish-prescribed-drug-register - 2025-07-21

Other registers

Arthroplasty and Arthroscopy A Swedish hip arthroscopy registry: demographics and development The Swedish Knee Arthroplasty Register: a review The Swedish Knee Arthroplasty Register (www.knee.se) Validation of the Swedish Knee Arthroplasty Register: a postal survey regarding 30,376 knees operated on between 1975 and 1995 Paediatric Cataract Congenital cataract screening in maternity wards is effec

https://www.lupop.lu.se/lupop-researchers/population-data/swedish-registers/other-registers - 2025-07-21

Submit cohort link

If a description of your project and/or cohort is already available on a website, add the information requested below and we will include a link to your site under the heading "Cohorts". Name of the cohort (required) URL (required) Contact person (required) E-mail (required) Phone Leave this field blank The Scania Metadatabase for Epidemiology SND Swedish National Data Service

https://www.lupop.lu.se/form/submit-cohort-link - 2025-07-21

Betydelsen av sensomotorisk analys, träning och förändrade hanteringsstrategier hos patienter som har eller riskerar utveckla långvarig smärta i rörelseorganen

Vid Smärtrehabilitering på Skånes universitetssjukhus rehabiliteras personer med långvarig smärta. Vid enheten planerar vi att göra en studie angående vilka interventioner hos fysioterapeut som ger bäst effekt och vilka ingångsdata de patienter har som får bäst effekt av ett rehabiliteringsprogram kallat Fysioterapiprogrammet. Vidare planerar vi undersöka vård- och läkemedelsbehov, sjukfrånvaro oc

https://www.lupop.lu.se/betydelsen-av-sensomotorisk-analys-traning-och-forandrade-hanteringsstrategier-hos-patienter-som-har - 2025-07-21

Cohorts

A cohort is a closed group of individuals included in a scientific study. Extensive researcher-generated data are often collected for cohorts at enrolment, which are then followed longitudinally with respect to disease or other outcomes. Cohort profiles: what are they good for?Cohorts by populationChildren and infantsMigration / migrantsMultigenerationalOlder peoplePregnant womenTeens and adolesce

https://www.lupop.lu.se/cohorts - 2025-07-21

Submit cohort information

If your cohort and/or project does not have its own website, fill in the form below and we will provide a site and place a link to it under "Cohorts" in the left menu. Name of the cohort (required) Contact person (required) E-mail (required) Phone Type of data (required) Register data Questionnaire data Interview data Data from medical examination Biological samples (e.g. blood or urine) Number of

https://www.lupop.lu.se/form/submit-cohort-information - 2025-07-21

Events

FAIR data seminar (Feb 5, 2019) A seminar about FAIR data, and how SND and Lund University can support making data FAIR, arranged by the SND-group at LU in collaboration with LUPOP.   Data Managment Plan seminar (May 7, 2019) A seminar about Data Management Plans - what they are and how to use them, arranged by the SND-group at LU in collaboration with LUPOP.   Are you breaking the law? (Dec 9, 20

https://www.lupop.lu.se/events - 2025-07-21

Newsletter

Sign up here!   Newsletter April 17 2019: Report from the SND workshop on data management plans SND Swedish National Data Service Research Support Research support at LU staff pages

https://www.lupop.lu.se/newsletter - 2025-07-21

Data Access Unit (DAU)

The SND network consists of the Swedish higher education institutions and public research institutes that have agreed to create local units for managing research data (Data Access Units, or DAUs). The main task for a DAU is to assist researchers in their respective organisation in making research data as accessible as possible, in accordance with the FAIR data principles (Findable, Accessible, Int

https://www.lupop.lu.se/data-access-unit-dau - 2025-07-21

Steering committe

Swedish National Data Service was established in 2008 on an initiative from the Swedish Research Council. As of 1 January 2018, Swedish National Data Service is a consortium led by the University of Gothenburg. The other consortium members are Karolinska Institutet, Lund University, Stockholm University, Swedish University of Agricultural Sciences, Umeå University, and Uppsala University. SND is j

https://www.lupop.lu.se/steering-committe - 2025-07-21

Start a new project

LUPOP can guide you in the process of starting a new population based study. From finding available data or collecting your own, to assisting in writing applications for funding and ethical approval. Browse available cohorts at LUSearch for national researcher generated data (external link)Read about national registersWrite a data management plan (DMP)Get in touch with my faculty libraryAsk us a q

https://www.lupop.lu.se/start-new-project - 2025-07-21

Make my data visible to others

The LUPOP website can help you make your data and project visible to others, wether it be fellow researchers, students, the public or media. I have a project website that I would like a link to on the LUPOP siteI have a project without a website that I would like displayed on the LUPOP siteI would like to find a student to write a thesis using my dataI want to place my data in a repository Resourc

https://www.lupop.lu.se/make-my-data-visible-others - 2025-07-21

Registration

Open seminar with speaker Victoria CanningBureaucratised Banality: Asylum and Immobility in Britain, Denmark and Sweden12:00-13.00 November 5, 2019Pangea, Geocentrum IIRegister by answering the questions below. Read more about the seminar here. Name (required) E-mail (required) How did you hear about the seminar? (required) Calendar at lu.se On facebook Through a colleague Infoboard (TV-screen) Po

https://www.lupop.lu.se/form/registration - 2025-07-21

Health care utilization in primary and specialist care among people with intellectual disability

A longitudinal register study (IDcare) AbstractAccording to Swedish law, one of the health care aims is equal treatment for the entire population. People with intellectual disability (ID) constitute a vulnerable group as they are at high risk for a number of health problems while at the same time they may have difficulties communicating their needs to health care professionals. It is therefore of

https://www.lupop.lu.se/idcare - 2025-07-21