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Den 11 augusti höll regeringen pressträff för att presentera resultatet av utredningen Organisation, styrning och finansiering av forskningsinfrastruktur. Utredningen har letts av Tobias Krantz och föreslår olika sätt att utveckla och stärka svensk forskningsinfrastruktur, bland annat genom att inrätta en ny myndighet med ansvar över digital infrastruktur. En sammanfattning av utredningen finns på

https://www.lupop.lu.se/article/utredning-foreslar-ny-myndighet-att-samla-digital-infrastruktur - 2025-10-09

An analysis of the Patient-Reported Outcome Measures Pilot from the Australian Orthopaedic Association National Joint Replacement Registry Read the paper at https://journals.plos.org/plosone/article?id=10.1371/journal.pone.02541…

https://www.lupop.lu.se/article/are-responders-patient-health-surveys-representative-those-invited-participate - 2025-10-09

Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how these registries code kidney disease and identifies needs for improvement of coding practi

https://www.lupop.lu.se/article/coding-practice-national-and-regional-kidney-biopsy-registries - 2025-10-09

The main purpose of arthroplasty registries is to collect information on patients, techniques, and devices to monitor and improve the outcome of the specific procedure. This study analyses the role played by registries in the orthopedic research community and describes publication trends, characteristics, and patterns of this field of research. Read the full paper at https://www.tandfonline.com/do

https://www.lupop.lu.se/article/rise-registry-based-research-bibliometric-analysis - 2025-10-09

Cancer registry data, supplemented by patient surveys, can provide a broader understanding of the quality of care and financial impacts of breast cancer among young women. Read the full paper at https://doi.org/10.1016/j.evalprogplan.2021.101967

https://www.lupop.lu.se/article/utility-linking-survey-and-registry-data-evaluate-interventions-and-policies-address-disparities - 2025-10-09

Our study found responder bias for age, but it did not exist for sex. Linking our sample frame to different national data registries, we determined that the characteristics of our non-responders were different from our responders on type of DM, CCI and SES. Read the paper at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8180289/

https://www.lupop.lu.se/article/danish-diabetes-musculoskeletal-cohort-non-responder-analysis-electronic-survey-using-registry-data - 2025-10-09

Causal and prediction research usually require different methods, and yet their findings may get conflated when reported and interpreted. The aim of the current study is to quantify the frequency of conflation between etiological and prediction research, to discuss common underlying mistakes and provide recommendations on how to avoid these. Read the paper at https://link.springer.com/article/10.1

https://www.lupop.lu.se/article/prediction-or-causality-scoping-review-their-conflation-within-current-observational-research - 2025-10-09

Vi planerar en studie som kommer att belysa om man kan använda ett billigt, men tekniskt förstärkt, fickultraljud för att undersöka kvinnor med symptom från brösten. Målet är att utveckla en undersökningsmetod som kan möjliggöra att kvinnor i länder med begränsade resurser får tillgång till bröstdiagnostik. All information är sedan tidigare insamlad och Du behöver inte göra något ytterligare. Läs

https://www.lupop.lu.se/article/ny-studie-fran-lunds-universitet-och-region-skane-brostdiagnostik-global-halsa - 2025-10-09

This study aimed to develop and evaluate a systematic arrangement for improvement and monitoring of data quality of the National Spinal Cord (and Column) Injury Registry of Iran (NSCIR-IR)—a multicenter hospital-based registry. Read the paper at https://www.nature.com/articles/s41394-020-00358-2

https://www.lupop.lu.se/article/impact-data-quality-assurance-and-control-solutions-completeness-accuracy-and-consistency-data - 2025-10-09

A registry of dementias based on clinical and administrative databases is valid and feasible. Its main contribution is to show the dimension of dementia in the health system. Read the paper at https://europepmc.org/article/med/29752034

https://www.lupop.lu.se/article/validity-computerized-population-registry-dementia-based-clinical-databases - 2025-10-09

Our aim is to identify a few key issues to shape a far-reaching Regulation that might permit the flexible and dynamic functioning of RIPI (Regulation of the Italian Implantable Prostheses Registry) providing suggestions for other registries at national and international level. Read the paper at https://www.iss.it/documents/20126/0/ANN_21_02_04.pdf

https://www.lupop.lu.se/article/far-reaching-regulation-italian-national-registry-implantable-prostheses-possible-model-other-health - 2025-10-09

The Nordic Arthroplasty Register Association (NARA) was established in 2007 by hip and knee arthroplasty registry leaders from Denmark, Norway, and Sweden. Purportedly, the idea of combining national databases was presented and discussed while sitting in a bar. Read the editorial at https://www.tandfonline.com/doi/full/10.1080/17453674.2021.1947006

https://www.lupop.lu.se/article/different-yet-strong-together-nordic-arthroplasty-register-association-nara - 2025-10-09

In this article, we examine study designs for extending (generalizing or transporting) causal inferences from a randomized trial to a target population. Specifically, we consider nested trial designs, where randomized individuals are nested within a sample from the target population, and nonnested trial designs, including composite data-set designs, where observations from a randomized trial are c

https://www.lupop.lu.se/article/study-designs-extending-causal-inferences-randomized-trial-target-population - 2025-10-09

A key misunderstanding is the belief that the goal of a causal analysis is to “detect” an effect. Causal effects are not binary signals that are either detected or undetected; causal effects are numerical quantities that need to be estimated. Read the paper at https://www.sciencedirect.com/science/article/abs/pii/S0895435621002730

https://www.lupop.lu.se/article/causal-analyses-existing-databases-no-power-calculations-required - 2025-10-09

I ramverket kommer vi använda kunskap om biologisk mångfald, ekologiska processer, miljöpsykologi, och epidemiologi för att hitta en gemensam väg framåt för att bemöta dessa globala utmaningar i praktiken. Vi rekryterar nu tre postdoktorer som tillsammans kommer att koordinera forskningen i projektet. Läs mer och sök tjänsterna på https://lu.varbi.com/what:job/jobID:422401/

https://www.lupop.lu.se/article/agenda-2030-postdoctoral-researcher-biodiversity-and-health - 2025-10-09

Spine surgery research has improved considerably over the last few decades. Its’ most recent growth is in large part due to the mounting increase in studies conducted using national databases and registries. With easy access to a large number of patients, the benefit of these registries has become evident. However, as with any research, this type of data must be used responsibly with the appropria

https://www.lupop.lu.se/article/big-data-registries-spine-surgery-research-lurking-dangers - 2025-10-09

Modern Epidemiology 4th is a gigantic project completed in grand style. One can only imagine all the considerations and discussions about content, terminology, ordering, et cetera that the authors had to go through and agree on to make this edition happen. Read the review at https://link.springer.com/article/10.1007%2Fs10654-021-00778-w

https://www.lupop.lu.se/article/book-review-modern-epidemiology-4th-edition - 2025-10-09

The Department of Public Health contributes to teaching in medicine, public health science, sport science and nursing. At the department, you will have approx. 200 colleagues, including 90 academic staff members and a corresponding number of PhD students. Available positions: Tenure Track Assistant Professor at the Department of Public Health Professor at the Department of Public Health

https://www.lupop.lu.se/article/available-positions-department-public-health-aarhus-university - 2025-10-09

The German RheumaDatenRhePort (RHADAR) registry encompasses a network of rheumatologists and researchers in Germany providing pseudonymized real-world patient data and allowing timely and continuous improvement in the care of RMD patients. Read the paper at https://www.jmir.org/2021/5/e28164

https://www.lupop.lu.se/article/real-world-rheumatology-registry-and-research-consortium-german-rheumadatenrheport-rhadar-registry - 2025-10-09

In this editorial, we discuss the current state-of-play of PROMs collection by kidney registries and provide an overview of what is (un)known about the feasibility and effectiveness of PROMs in CKD and other conditions. Read the paper at https://academic.oup.com/ckj/article/14/6/1495/6173985

https://www.lupop.lu.se/article/role-kidney-registries-expediting-large-scale-collection-patient-reported-outcome-measures-people - 2025-10-09